There are two dominant patterns these days for e-NABLE volunteers and recipients to find each other. These two patterns — the mostly local and the mostly global patterns — reinforce and (soon, hopefully) complement each other.

The mostly local pattern

  • An individual or a chapters develops a reputation
  • A recipient contacts them
  • The individual or chapter members develop a solution
  • The recipient receives the device — and the equally important goodwill
  • Chapters and local media celebrate the event, thus spreading the chapter’s reputation (and e-NABLE’s)

 

The mostly global (and emerging) pattern

  • Prospective recipients and volunteers register with e-NABLE Web Central, identifying their needs and offerings
  • Recipients use the site to find volunteers eager to help
  • Volunteers use the site to to find recipient cases in need of their skills
  • A team of volunteers plus recipient coalesces
  • They use the site to select, customize, fabricate, and track a device
  • They get the job done and (soon, I believe), make pictures and follow-up data visible through the site

The creators of e-NABLE Web Central (long-time e-NABLE volunteer Jeremy Simon and Aleks Jones, partners at 3D Universe) are adding chapter and case-management features to e-NABLE Web Central on a near-weekly basis — so that may be helpful in supporting chapters’ matching ability. And even if chapters do their own matching, it would be great for all of us if they uploaded data about their cases to the e-NABLE Web Central so we can begin assessing impact and improving our devices and services based up on feedback.

 

——————-This article is an original e-NABLE Newsletter publication——————-


jonschull

Founder, e-NABLE.

2 Comments

Barbara Turpin · February 27, 2018 at 4:41 pm

My son, Todd Hammond, became involved with e-nable in 2014, shortly after he became a quadruple amputee at age 42. We drove from Columbus, Ohio to attend the conference at John Hopkins and met and connected with Jon Scholl. There was an attempt to work with a volunteer in Maryland, but it fell through. Subsequent requests to Jon and Jen to move forward were unsuccessful. I see from the current newsletter that progress has been made connecting volunteers with recipients. The biomedical and rehab services departments at the Ohio State University have been available to him. My son feels he was left behind when he could have been part of the development of the latest devices. I feel follow up and communication could have been better.

    jonschull · February 27, 2018 at 5:20 pm

    Hello Barbara,

    Thank you for the note. I’m sorry we let you down.

    We are volunteers and amateurs, and Todd’s is a challenging case. It was, and may still be, beyond our technical or organizational capacity to help. (I think we have gotten better at setting expectations, as you can see.)

    EnableWebCentral is now the right place to seek a team, but it is important to understand that we don’t currently work on lower limbs, or above-elbow amputations.

    If I recall, Todd is a below elbow amputee, correct?

    We would need a dedicated and committed team to work with you both. I don’t think we have that at Ohio State. I see that there is a group there but it doesn’t seem to be active. Have you been in touch with them?

    https://www.facebook.com/groups/130511320914188/?source=create_flow

    Or are the people at OSU biomedical and rehab interested in becoming part of the volunteer community?

    Regards to you and Todd.

Leave a Reply

Your email address will not be published. Required fields are marked *