e‑NABLE’s Strategic Planning Committee (SPC)

The Strategic Planning Committee was formed to provide a venue for the discussion of issues affecting the e‑NABLE community as a whole. The goal of the SPC is to provide guidance, tools, and resources to support the global e‑NABLE volunteer community. The SPC also works to address any road-blocks or challenges that stand in the way of e‑NABLE’s mission of providing free assistive devices to people around the world.

The e‑NABLE community does not currently have any formal governance mechanism. There are no decision-makers. The SPC is intended to provide an informal governance framework, making suggestions to the community rather than imposing strict mandates. To ensure transparency, all SPC meetings are recorded, and these recordings are shared with the e‑NABLE community along with notes from each meeting (see Links to SPC Meeting Recordings and Notes below.

SPC Members

Jeremy Simon, SPC Chair

Jeremy has been a part of e‑NABLE for 4 years and helps to support the enablingthefuture.org website. His company, 3D Universe, is a strong supporter of e‑NABLE and is responsible for developing the e‑NABLE Web Central application. He is a mentor to fellow volunteers as well as classrooms around the world who are interested in participating in the e‑NABLE project.

 

Jon Schull, Founder e‑NABLE, Re‑NABLE

Jon Schull is the Founder of e‑NABLE.  An educator, social and business entrepreneur, inventor, human-computer interaction researcher, and digital community organizer also co-founded the Enable Community Foundation and the pioneering digital rights company SoftLock.com, aka DigitalGoods.com.

Schull is the author of 19 patents, most of them informed by his theoretical work in complex adaptive systems and his Ph.D. in Biological Psychology from University of Pennsylvania. Schull and his collaborators pioneer solutions for “Connected Humanitarians” and their beneficiary-partners around the world.

Maria Esquela

Maria has been an active e‑NABLE Volunteer and leader since 2014. She created the first “assembly line” model for the e‑NABLE “Hand-a-thon” team building events, brought the e‑NABLE project to scout troops around the world and is the founder of APBLS – Alliance for Project Based Learning Solutions or what we like to call “e‑NABLE Alliance,” a 501c3 non-profit, which focuses on using e‑NABLE in STEM Based service learning projects and creating curriculum for research and testing on e‑NABLE 3D printed devices.

Eric Bubar

Eric has been an active e‑NABLEr for around 3 years. Over the past three years, he has pivoted his research lab to focus on assisting with the e‑NABLE mission to give the world a helping hand. He has extensively involved a variety of liberal arts students in STEM research projects related to e‑NABLE devices. These projects have ranged from quantifying grip strength of e‑NABLE hands to assessing elementary/middle school student opinions of popular 3D printed hand designs. In addition, he is active in the Google+ e‑NABLE community and has publicized e‑NABLE’s work at a variety of events throughout the Washington DC Metro area.

Jen Mankoff

Dr. Jennifer Mankoff is a Professor in the Allen School of Computer Science and Engineering at the University of Washington. She earned her B.A. at Oberlin College and her Ph.D. in Computer Science at the Georgia Institute of Technology. Her research focuses on increasing the capacity of diverse groups to solve real world problems. Most recently, she has focused on the issue of tools to support fabrication of assistive technologies using methods such as 3D printing. She has been part of the e-NABLE community since 2015 and is working to help support research on device efficacy and design.

Everton Lins

Everton is passionate about project management and process design, working as a project manager since 2005. He is using his experience with multidisciplinary teams to lead the e-NABLE Brazil chapter, working on the standardization of chapter processes and the adaptation of the e-NABLE culture to meet the regulatory policies for assistive device manufacturing and distribution in Brazil.

 

Patrick Carreiro

Patrick has always had a passion for life and firmly believes that everyday is about being the best you can be; about creating understanding; about bridging paths to harmony; and about staying optimistic inside and out. He hopes that e-NABLE will allow him to assist with their overlapping ideologies and mission. Having first gone to school for Pre-Med, Patrick now has experience as an IT Contractor/Business-Owner, Pre-Law Student with a Pre-Law Degree, and plans to go to Law school with the mission to improve Public Policy in Healthcare and overall transparent community-building. In his free time, he is a multi-medium painter and musician.

Links to SPC Meeting Recordings and Notes

Date Link to Video Recording Link to Meeting Notes
April 20, 2018 https://youtu.be/WDv19hiKd0c http://bit.ly/2HfatpG
April 13, 2018 https://youtu.be/Bgss2rIQOjk http://bit.ly/2JIvI0F
April 6, 2018 https://youtu.be/-BmMjYnW38Q http://bit.ly/2EpACfv
March 30, 2018 https://youtu.be/DNag2St_3rM https://goo.gl/FVvfyo
March 16, 2018 https://youtu.be/4acurhPJZ4w https://goo.gl/ogPNNT
March 9, 2018 https://youtu.be/iLEutcTLtG4 https://goo.gl/W9h2aT
March 2, 2018 https://youtu.be/44-Q1LS3_Fc https://goo.gl/4A6qbX
February 23, 2018 https://youtu.be/hK0z6grH_5o https://goo.gl/ECPcxu
February 16, 2018 https://youtu.be/MQgjoX4NSRI https://goo.gl/Z3TjPm
February 9, 2018 https://youtu.be/JOsfVMq36FI https://goo.gl/h2dpnL
February 2, 2018 No video https://goo.gl/HcfacN
January 26, 2018 https://youtu.be/YW_UjtkmsYs https://goo.gl/s4fmSV
January 12, 2018 https://youtu.be/tHAxqka139M https://goo.gl/yGA8aw
December 22, 2017 https://youtu.be/dUhI7jdhWHU https://goo.gl/v74UGs
December 8, 2017 https://youtu.be/ZE7ggVqb-_o https://goo.gl/vdNyCW
December 1, 2017 https://youtu.be/mOFXpeA7kMg https://goo.gl/Xo2aaW
November 17, 2017 https://youtu.be/_obnoN_jMTw https://goo.gl/cfNa6M
November 10, 2017 https://youtu.be/9TPj5nKWEhQ https://goo.gl/KHKNuE
November 3, 2017 https://youtu.be/iYZ6SAKLP3k https://goo.gl/Y743r1
October 27, 2017 https://youtu.be/ajPBSc-Feqg https://goo.gl/33d5vi
October 20, 2017 https://youtu.be/Nh8Pxrr-BFI https://goo.gl/yx3JSX
October 13, 2017 https://youtu.be/epJu1WigZ34 https://goo.gl/jag1WK
October 6, 2017 https://youtu.be/eOwJRqVduXc https://goo.gl/WzHvdX
September 29, 2017 https://youtu.be/-rfHvO_Ok_M https://goo.gl/Q1LX8S
September 22, 2017 https://youtu.be/jXs8vPqqqxw https://goo.gl/P4YW6C
September 15, 2017 https://youtu.be/wEbDVh50Nck https://goo.gl/MbWCzq
September 8, 2017 https://youtu.be/Edk5k5r1zFE https://goo.gl/LxVpcd
August 18, 2017 (Portland, OR Gathering) https://youtu.be/gyY5wG_tnyU https://goo.gl/mep6aA
August 11, 2017 No Video https://goo.gl/Ug3Kau
August 4, 2017 https://youtu.be/t-S1ccwPeD4 https://goo.gl/RnvDVT
July 28, 2017 https://youtu.be/j2cjTIy8cS4 https://goo.gl/VzEJcy
July 21, 2017 https://youtu.be/mSyGXx5_Yas https://goo.gl/s8CiJX
July 14, 2017 https://youtu.be/0g_QuqGG7LQ https://goo.gl/2kBFCq
July 7, 2017 https://youtu.be/22bhSwcwa_k https://goo.gl/qtDYDJ
June 30, 2017 https://youtu.be/b9mShTUqkDs https://goo.gl/Eh9FHy
June 23, 2017 https://youtu.be/WvBqm5KZFQA https://goo.gl/2TB3p4
June 16, 2017 https://youtu.be/AUouFD22CvY https://goo.gl/EQebSb
June 9, 2017 https://youtu.be/m69E2cZ8GPw https://goo.gl/ztFuaw
June 2, 2017 https://youtu.be/8UUE3VYYvP8 https://goo.gl/KaK32C
May 26, 2017 https://youtu.be/ch1UV_83skA https://goo.gl/KDNTHL
May 19, 2017 https://youtu.be/9CkaGacDYcA https://goo.gl/EccCSD
May 12, 2017 https://youtu.be/9vsBUG1MvNI https://goo.gl/zwhNo7
May 5, 2017 https://youtu.be/9y4n5tHkJTo https://goo.gl/fvzkkx
April 28, 2017 https://youtu.be/B4afUjXmzjI https://goo.gl/GgzrWj
April 28, 2017 No video https://goo.gl/B81xW9

Governance of the SPC (and how to be a part of it)

Membership

  • After creating the e‑NABLE G+ community Jon Schull recruited several community leaders who recruited some more as circumstances seemed to warrant. We are eager to be joined by the next generation of e‑NABLE leaders and we’re trying to formulate a lightweight representative democratic process to better realize the emerging vision of e‑NABLE as a “bossless” confederation of Chapters and individuals united by shared values. To participate in this bootstrapping process, please contact Jeremy Simon.

Submit a topic for SPC discussion/consideration

SPC Research effort

e-NABLE Initiatives Approved by Community Voting

e-NABLE is using the Loomio platform for voting on proposed initiatives and projects. For details, please see the instructions here.

Approved Initiatives

E-NABLE Community Printables, Flyer, Event materials packet

Date Approved: March 30, 2018

Funding Amount: $4,000 (4 Payments of $1000 dependent on deliverables)

Description: Creation of an e-NABLE Community Printables Packet, Posters, Business Cards and event materials that can be edited by volunteers who may want to replace the English text with text in their own language and add their own e-NABLE Chapter logo and information to it.

Link to Details: Loomio proposal

Current Status: Work is in progress


Let’s Make a Newsletter

Date Approved: December 15, 2017

Funding Amount: $1,500 for one year

Description: e-NABLE launched a newsletter this summer, but with no one to lead the project, it has not yet flourished. By Jon Schull’s invitation, Sarah Anne Paynter would like to write a monthly newsletter for e-NABLE.

Link to Details: Loomio proposal

Current Status: Work is in progress. First payment has been issued.


Using 3D Printed Prosthetic Hands to Improve the Quality of Life of Appalachian Children

Date Approved: November 24, 2017

Funding Amount: $1,000

Description: Conduct a study of how e-NABLE devices affect the quality of life of children in the Southern Appalachian region. The study will include standardized pediatric quality of life surveys, as well as Actigraph accelerometry, which will track how much the child is moving the affected limb in space before and after being fitted with the prosthetic.

Link to Details: Loomio proposal

Current Status: Waiting for an invoice to be generated, after which funding will be issued.


Establish Re-NABLE as custodian for the $50,000 from Google and as executor of the Mini-Grant program

Date Approved: November 6, 2017

Funding Amount: $3,500

Description: The Board of Rochester e-NABLE (a NY State non-profit) will become custodian for the $50,000 from Google and act as executor of the e-NABLE Mini-Grant program.

Link to Details: Loomio proposal

Current Status: Funds have been transferred to Re-NABLE. All future approved funding requests will be facilitated by Re-NABLE.


Allocate funding to support Jen Owen’s work on enablingthefuture.org and other e-NABLE related initiatives

Date Approved: September 8, 2017

Funding Amount: $12,500

Description: Based upon community voting, it was decided that $12,500 would be allocated to enablingthefuture.org (Jen Owen) as reward for the past 3 years of work and to facilitate ongoing work on ETF. Another $12,500 will be allocated to support specific ETF projects, pending community review of Jen’s proposals.

Link to Details: Loomio proposal

Current Status: A wire transfer for $12,500 has been sent to Jen Owen.

SPC Documents

English

Português