e‑NABLE’s Strategic Planning Committee (SPC)

The Strategic Planning Committee was formed to provide a venue for the discussion of issues affecting the e‑NABLE community as a whole. The goal of the SPC is to provide guidance, tools, and resources to support the global e‑NABLE volunteer community. The SPC also works to address any road-blocks or challenges that stand in the way of e‑NABLE’s mission of providing free assistive devices to people around the world.

The e‑NABLE community does not currently have any formal governance mechanism. There are no decision-makers. The SPC is intended to provide an informal governance framework, making suggestions to the community rather than imposing strict mandates. To ensure transparency, all SPC meetings are recorded, and these recordings are shared with the e‑NABLE community along with notes from each meeting (see Links to SPC Meeting Recordings and Notes below.

SPC Members

SPC Members

Jeremy Simon, SPC Chair

Jeremy has been a part of e‑NABLE for 4 years and helps to support the enablingthefuture.org website. His company, 3D Universe, is a strong supporter of e‑NABLE and is responsible for developing the e‑NABLE Web Central application. He is a mentor to fellow volunteers as well as classrooms around the world who are interested in participating in the e‑NABLE project.

Jon Schull, Founder e‑NABLE, Re‑NABLE

Jon Schull is the Founder of e‑NABLE.  An educator, social and business entrepreneur, inventor, human-computer interaction researcher, and digital community organizer also co-founded the Enable Community Foundation and the pioneering digital rights company SoftLock.com, aka DigitalGoods.com.

Schull is the author of 19 patents, most of them informed by his theoretical work in complex adaptive systems and his Ph.D. in Biological Psychology from University of Pennsylvania. Schull and his collaborators pioneer solutions for “Connected Humanitarians” and their beneficiary-partners around the world.

Maria Esquela

Maria has been an active e‑NABLE Volunteer and leader since 2014. She created the first “assembly line” model for the e‑NABLE “Hand-a-thon” team building events, brought the e‑NABLE project to scout troops around the world and is the founder of APBLS – Alliance for Project Based Learning Solutions or what we like to call “e‑NABLE Alliance,” a 501c3 non-profit, which focuses on using e‑NABLE in STEM Based service learning projects and creating curriculum for research and testing on e‑NABLE 3D printed devices.

Eric Bubar

Eric has been an active e‑NABLEr for around 3 years. Over the past three years, he has pivoted his research lab to focus on assisting with the e‑NABLE mission to give the world a helping hand. He has extensively involved a variety of liberal arts students in STEM research projects related to e‑NABLE devices. These projects have ranged from quantifying grip strength of e‑NABLE hands to assessing elementary/middle school student opinions of popular 3D printed hand designs. In addition, he is active in the Google+ e‑NABLE community and has publicized e‑NABLE’s work at a variety of events throughout the Washington DC Metro area.

Jen Mankoff

Dr. Jennifer Mankoff is a Professor in the Allen School of Computer Science and Engineering at the University of Washington. She earned her B.A. at Oberlin College and her Ph.D. in Computer Science at the Georgia Institute of Technology. Her research focuses on increasing the capacity of diverse groups to solve real world problems. Most recently, she has focused on the issue of tools to support fabrication of assistive technologies using methods such as 3D printing. She has been part of the e-NABLE community since 2015 and is working to help support research on device efficacy and design.

Everton Lins

Everton is passionate about project management and process design, working as a project manager since 2005. He is using his experience with multidisciplinary teams to lead the e-NABLE Brazil chapter, working on the standardization of chapter processes and the adaptation of the e-NABLE culture to meet the regulatory policies for assistive device manufacturing and distribution in Brazil.

Bob Rieger

A newcomer to e-NABLE, Bob enjoyed a 40-year career leading global specialty chemical businesses at the most senior levels. During this time, Bob served as president, CEO, group VP and group president of companies and businesses with annual revenues in the $30 million to over $1 billion range.

Bob earned his Bachelor and Masters Degree in Ceramic Engineering in 1972 and 1973 from Georgia Tech and a Masters Degree in Business from Syracuse University in 1977. He holds memberships in the American Ceramic Society, Keramos (Ceramic Engineering Honorary), Sigma Xi (Research Society of North America) and the National Institute of Ceramic Engineers. Additionally, he is a recipient of the Young Ceramic Engineer’s Award of the American Ceramic Society for 1990, and was named a Distinguished Engineering Alumnus of Georgia Tech in 1995. Bob’s interests include church mission work, volunteering at a local historical society and astrophotography. He and his wife have been married for 46 years and have 3 married children and 7 grandchildren.

According to Bob, volunteering with e-NABLE is a great opportunity to meet bright young people, learn new technologies and help people in need.

Jack Sutcliffe

Jack is the leader and co-founder for the Irish chapter of e-NABLE called ‘Open Creators Limerick’ which is based out of the Limerick Fab Lab workshop. He has a Bachelor in Product Design degree from the University of Limerick where he continues to work as a researcher on the European Union funded research project ‘iBUS’. The overall aim of the EU project is to develop an online platform for custom products and bring manufacturing closer to the end user by utilising the latest technologies including additive manufacturing and product visualisation tools. Jack is contributing to the research and development of the platform while pursuing a research masters based in customisation and 3D printing.

Jack has sought out and developed synergies between the e-NABLE community, his research and the iBUS project to develop a co-design platform prototype for use by e-NABLE volunteers and recipients.

Ed Greig

Ed is the Chief Disruptor for Deloitte and has been part of the e-NABLE Community since 2015. The Disruption Team he leads works with new technologies to deliver tangible benefits as quickly as possible to Deloitte’s clients and within the firm itself.

The team’s strict mantra is “Fall in Love with the Problem, not the Solution” and e-NABLE really embodies that. Since working with Phoebe, our first recipient, the Disruption team have seen clearly that the problem is not how to create the most functional arm, the problem is to create a functional arm that children actually want to wear. Deloitte are now working with a growing number of children in the UK and abroad and are also excited to be assisting the e-NABLE Community to make an even bigger impact globally.

Links to SPC Meeting Recordings and Notes

Please note: The e-NABLE SPC Meeting Archives have been moved to our new home on Wikifactory.

Date Link to Video Recording Link to Meeting Notes
March 22, 2019 https://youtu.be/VZcmJKjf0ro http://bit.ly/2FtXONc
March 15, 2019 https://youtu.be/vXog–YfdXg http://bit.ly/2O6JKfj
March 1, 2019 https://youtu.be/S8W-VDWYCN4 http://bit.ly/2Xx5zcf
February 22, 2019 https://youtu.be/_S8XylwTuqk http://bit.ly/2XjiaiZ
February 15, 2019 https://youtu.be/-Zn90TX_Pds http://bit.ly/2Ec2zui
February 8, 2019 https://youtu.be/r5AmtVrt2QA http://bit.ly/2RRUMoY
February 1, 2019 https://youtu.be/jnqk4XoNf_I http://bit.ly/2WFao2O
January 25, 2019 https://youtu.be/7wqWgGGhYFI http://bit.ly/2B5bqfr
January 18, 2019 https://youtu.be/tGER6rDLPeI http://bit.ly/2MgCgWh
January 4, 2019 https://youtu.be/K7vuUpWtx2k http://bit.ly/2Ru7GgW
December 21, 2018 https://youtu.be/AghIKtmnkis http://bit.ly/2PVgJlV
December 7, 2018 https://youtu.be/0R1F4XPdl0Q http://bit.ly/2SLOaJw
November 30, 2018 https://youtu.be/TN5TXdHC5NA http://bit.ly/2RrLIaP
November 16, 2018 https://youtu.be/Sfe43tjPVH4 http://bit.ly/2FuicA1
November 9, 2018 https://youtu.be/uWZgUT6yxVg http://bit.ly/2FoAL8m
November 2, 2018 https://youtu.be/Gi6b89MAU48 http://bit.ly/2P30qYR
October 26, 2018 https://youtu.be/DP848eaAs7E http://bit.ly/2O5y9LW
October 19, 2018 https://youtu.be/bdV4B9PNeIg http://bit.ly/2PHbBCH
October 12, 2018 https://youtu.be/-6qbMKW875Y http://bit.ly/2QNmDq3
October 5, 2018 https://youtu.be/OTlwfnmRPs8 http://bit.ly/2OHcxd3
September 28, 2018 https://youtu.be/2r-15VnFb6M http://bit.ly/2OVyySd
September 21, 2018 https://youtu.be/lPhbO7u42SM http://bit.ly/2QPWurt
September 14, 2018 https://youtu.be/FhKGrpCGVHk http://bit.ly/2NbkF5y
September 7, 2018 https://youtu.be/VDeHwiuh8u0 http://bit.ly/2wx8S7j
August 17, 2018 https://youtu.be/gU1cJqtzGdI http://bit.ly/2nSGg3X
August 10, 2018 https://youtu.be/snQwUvNOfcQ http://bit.ly/2KHNMYc
August 3, 2018 https://youtu.be/XPR9cAlxazE http://bit.ly/2LZKZhK
July 20, 2018 https://youtu.be/dCRET_YGezI http://bit.ly/2LE6uS0
June 29, 2018 https://youtu.be/IRgHYS-Byr8 http://bit.ly/2lGy3hS
June 22, 2018 https://youtu.be/ncJvYNzCbbM http://bit.ly/2Mfs9j2
June 15, 2018 https://youtu.be/Fma83sS1LY4 http://bit.ly/2Mtk8rC
June 8, 2018 https://youtu.be/mIgxQgHxoyQ http://bit.ly/2sIRzhC
June 1, 2018 https://youtu.be/E44m4Ocd2HM http://bit.ly/2LTCqlO
May 25, 2018 https://youtu.be/pMR-6p1fpNw http://bit.ly/2Ja7Kyg
May 18, 2018 https://youtu.be/h0RxP0FNQ8o http://bit.ly/2kcn7Yx
May 11, 2018 https://youtu.be/o6SG47XcO5U http://bit.ly/2jRqswd
May 4, 2018 https://youtu.be/E4K_dbpQmgk http://bit.ly/2HVVeOV
April 27, 2018 https://youtu.be/dAW-Jx8gHTw http://bit.ly/2JyBbq3
April 20, 2018 https://youtu.be/WDv19hiKd0c http://bit.ly/2HfatpG
April 13, 2018 https://youtu.be/Bgss2rIQOjk http://bit.ly/2JIvI0F
April 6, 2018 https://youtu.be/-BmMjYnW38Q http://bit.ly/2EpACfv
March 30, 2018 https://youtu.be/DNag2St_3rM https://goo.gl/FVvfyo
March 16, 2018 https://youtu.be/4acurhPJZ4w https://goo.gl/ogPNNT
March 9, 2018 https://youtu.be/iLEutcTLtG4 https://goo.gl/W9h2aT
March 2, 2018 https://youtu.be/44-Q1LS3_Fc https://goo.gl/4A6qbX
February 23, 2018 https://youtu.be/hK0z6grH_5o https://goo.gl/ECPcxu
February 16, 2018 https://youtu.be/MQgjoX4NSRI https://goo.gl/Z3TjPm
February 9, 2018 https://youtu.be/JOsfVMq36FI https://goo.gl/h2dpnL
February 2, 2018 No video https://goo.gl/HcfacN
January 26, 2018 https://youtu.be/YW_UjtkmsYs https://goo.gl/s4fmSV
January 12, 2018 https://youtu.be/tHAxqka139M https://goo.gl/yGA8aw
December 22, 2017 https://youtu.be/dUhI7jdhWHU https://goo.gl/v74UGs
December 8, 2017 https://youtu.be/ZE7ggVqb-_o https://goo.gl/vdNyCW
December 1, 2017 https://youtu.be/mOFXpeA7kMg https://goo.gl/Xo2aaW
November 17, 2017 https://youtu.be/_obnoN_jMTw https://goo.gl/cfNa6M
November 10, 2017 https://youtu.be/9TPj5nKWEhQ https://goo.gl/KHKNuE
November 3, 2017 https://youtu.be/iYZ6SAKLP3k https://goo.gl/Y743r1
October 27, 2017 https://youtu.be/ajPBSc-Feqg https://goo.gl/33d5vi
October 20, 2017 https://youtu.be/Nh8Pxrr-BFI https://goo.gl/yx3JSX
October 13, 2017 https://youtu.be/epJu1WigZ34 https://goo.gl/jag1WK
October 6, 2017 https://youtu.be/eOwJRqVduXc https://goo.gl/WzHvdX
September 29, 2017 https://youtu.be/-rfHvO_Ok_M https://goo.gl/Q1LX8S
September 22, 2017 https://youtu.be/jXs8vPqqqxw https://goo.gl/P4YW6C
September 15, 2017 https://youtu.be/wEbDVh50Nck https://goo.gl/MbWCzq
September 8, 2017 https://youtu.be/Edk5k5r1zFE https://goo.gl/LxVpcd
August 18, 2017 (Portland, OR Gathering) https://youtu.be/gyY5wG_tnyU https://goo.gl/mep6aA
August 11, 2017 No Video https://goo.gl/Ug3Kau
August 4, 2017 https://youtu.be/t-S1ccwPeD4 https://goo.gl/RnvDVT
July 28, 2017 https://youtu.be/j2cjTIy8cS4 https://goo.gl/VzEJcy
July 21, 2017 https://youtu.be/mSyGXx5_Yas https://goo.gl/s8CiJX
July 14, 2017 https://youtu.be/0g_QuqGG7LQ https://goo.gl/2kBFCq
July 7, 2017 https://youtu.be/22bhSwcwa_k https://goo.gl/qtDYDJ
June 30, 2017 https://youtu.be/b9mShTUqkDs https://goo.gl/Eh9FHy
June 23, 2017 https://youtu.be/WvBqm5KZFQA https://goo.gl/2TB3p4
June 16, 2017 https://youtu.be/AUouFD22CvY https://goo.gl/EQebSb
June 9, 2017 https://youtu.be/m69E2cZ8GPw https://goo.gl/ztFuaw
June 2, 2017 https://youtu.be/8UUE3VYYvP8 https://goo.gl/KaK32C
May 26, 2017 https://youtu.be/ch1UV_83skA https://goo.gl/KDNTHL
May 19, 2017 https://youtu.be/9CkaGacDYcA https://goo.gl/EccCSD
May 12, 2017 https://youtu.be/9vsBUG1MvNI https://goo.gl/zwhNo7
May 5, 2017 https://youtu.be/9y4n5tHkJTo https://goo.gl/fvzkkx
April 28, 2017 https://youtu.be/B4afUjXmzjI https://goo.gl/GgzrWj
April 28, 2017 No video https://goo.gl/B81xW9

Governance of the SPC (and how to be a part of it)

  • After creating the e‑NABLE G+ community Jon Schull recruited several community leaders who recruited some more as circumstances seemed to warrant. We are eager to be joined by the next generation of e‑NABLE leaders and we’re trying to formulate a lightweight representative democratic process to better realize the emerging vision of e‑NABLE as a “bossless” confederation of Chapters and individuals united by shared values. To participate in this bootstrapping process, please contact Jeremy Simon.

Submit a topic for SPC discussion/consideration

SPC Research effort

e-NABLE Initiatives Approved by Community Voting

e-NABLE is using the Loomio platform for voting on proposed initiatives and projects. For details, please see the instructions here.

Approved Initiatives

Consulting Prosthetics Student Funding Proposal

Date Approved: October 27, 2018 Funding Amount: $4,800 USD Description: Chang Liu, current 4th year student (2018-19) of the Prosthetics and Orthotics department, has done a summer internship with e-NABLE, a global community that provides under-resourced users with 3D printed prosthetic arm solutions. Through this internship, it has become clear that the collaborative input of prosthetics students and e-NABLE engineers/designers will lead to better innovation, and the provision of safer and more functional 3D printed prostheses for recipients globally. She has presented on the outcomes of this internship and this funding proposal during the SPC meeting on 12/10/18. Chang would like to seek funding to be employed for 10 hours a week to help extend this collaboration to additional P&O students of Strathclyde. Link to Details: Loomio proposal Current Status: Work is in progress

Funding a SHAP clinical evaluation kit for an e-NABLE clinical study in South Florida (Nicklaus Children’s Hospital, Miami, FL)

Date Approved: October 19, 2018 Funding Amount: $2,665 USD Description: Southampton Hand Assessment Procedure kit to provide to Nicklaus Children’s Hospital (Miami, FL), in support of a five (5) year pilot study evaluating the efficacy of 3-D scanning for custom fitting of eNABLE devices and designing novel devices to increase access to 3-D printed orthotic and prosthetic devices to upper limb amputees. Link to Details: Loomio proposal Current Status: Work is in progress

Micro-Grant to fund creation of a simple, low-cost mechanical gripper thumb

Date Approved: October 10, 2018 Funding Amount: $500 USD Description: Eric Bubar has applied for a sabbatical to create a microswitch activated gripper thumb. This would be an ultra-low cost, purposely simple design that uses a servo or dc motor to actuate a cable or directly drive the thumb in the gripper thumb prosthetic design of Skip Meetze. The purpose of this micro grant is to provide $500 of funding for equipment costs. Based on early prototypes, this should be sufficient to purchase electronics for 8-10 mechanical gripper thumbs. This funding would be used to purchase the necessary electronics and create kits to provide to partners interested in creating, testing and providing feedback on the design. Additional plastic and other hardware costs to build the hands and any shipping costs would be covered by Eric’s current research lab budget. The requested funding is largely needed to demonstrate that interest in this project from eNABLE as an entity is high. This will strengthen the competitiveness of the sabbatical proposal for the review committee. Link to Details: Loomio proposal Current Status: Work is in progress

Fund Jen Owen’s Work for the Global Community

Date Approved: September 1, 2018 Funding Amount: $10,000 USD Description: $4000 for 8 months previous work in 2018 at a rate of $500 per month – taken from the funds set aside for Jen Owen and voted on by the community – payable immediately. $500 per month for 5 months from the remaining funding set aside for Jen Owen by previous vote of the community. $500 per month out of the Enable Fund from the community to continue working for them until such a time that Jen is no longer able to or no longer needed once the initial funds set aside for her have run out. Given the wording of the proposal, we are considering this an approval for $10,000 ($4,000 for previous work, $2,500 for 5 months of work already approved by the community, and another 7 months at $500/month). That will take us to September, 2019, at which point a new proposal will be needed. Link to Details: Loomio proposal Current Status: Work is ongoing

New Modular Arm Design

Date Approved: June 1, 2018 Funding Amount: None ($12,500 USD funding will be raised through GoFundMe, with 10% going back to the e-NABLE Fund) Description: Create a design useful in developing countries for amputations below and above elbow. Design a systems approach to upper limb prosthetics, that will better meet the need of arm amputations in the developing word. This will be a modular design that can be manufactured as parts. The final assembly and fitting can be done from a standard set of pre-made parts in a single visit with the recipient. The design will focus on the largest population need, lower arm and mid upper arm recipients. Link to Details: Loomio proposal Current Status: In progress

Ongoing e-NABLE Web Central Development

Date Approved: April 27, 2018 Funding Amount: $10,000 USD Description: The 3D Universe team (Jeremy Simon and Aleks Jones) have been working on the development of e-NABLE Web Central for over a year. A lot of work has been completed, but there are many features that we still hope to deliver. We have always done this development work as volunteers without financial support, and we intend to continue doing so as far as our own contributions are concerned. However, moving forward, we are going to need the help of additional developers, and we are seeking funding assistance to help pay these additional developers for their work. Link to Details: Loomio proposal Current Status: Guillermo (the developer we hired) is doing a great job, and we’re adding lots of new features and functionality. A detailed report of what’s been accomplished with Guillermo’s time will be posted to the Loomio page and the OpenCollective e-NABLE Fund page soon.

E-NABLE Community Printables, Flyer, Event materials packet

Date Approved: March 30, 2018 Funding Amount: $4,000 USD (4 Payments of $1000 USD dependent on deliverables) Description: Creation of an e-NABLE Community Printables Packet, Posters, Business Cards and event materials that can be edited by volunteers who may want to replace the English text with text in their own language and add their own e-NABLE Chapter logo and information to it. Link to Details: Loomio proposal Current Status: Work is in progress

Let’s Make a Newsletter

Date Approved: December 15, 2017 Funding Amount: $1,500 for one year Description: e-NABLE launched a newsletter this summer, but with no one to lead the project, it has not yet flourished. By Jon Schull’s invitation, Sarah Anne Paynter would like to write a monthly newsletter for e-NABLE. Link to Details: Loomio proposal Current Status: Work is in progress

Using 3D Printed Prosthetic Hands to Improve the Quality of Life of Appalachian Children

Date Approved: November 24, 2017 Funding Amount: $1,000 Description: Conduct a study of how e-NABLE devices affect the quality of life of children in the Southern Appalachian region. The study will include standardized pediatric quality of life surveys, as well as Actigraph accelerometry, which will track how much the child is moving the affected limb in space before and after being fitted with the prosthetic. Link to Details: Loomio proposal Current Status: Waiting for an invoice to be generated, after which funding will be issued.

Establish Re-NABLE as custodian for the $50,000 from Google and as executor of the Mini-Grant program

Date Approved: November 6, 2017 Funding Amount: $3,500 Description: The Board of Rochester e-NABLE (a NY State non-profit) will become custodian for the $50,000 from Google and act as executor of the e-NABLE Mini-Grant program. Link to Details: Loomio proposal Current Status: Funds have been transferred to Re-NABLE. All future approved funding requests will be facilitated by Re-NABLE.

Allocate funding to support Jen Owen’s work on enablingthefuture.org and other e-NABLE related initiatives

Date Approved: September 8, 2017 Funding Amount: $12,500 Description: Based upon community voting, it was decided that $12,500 would be allocated to enablingthefuture.org (Jen Owen) as reward for the past 3 years of work and to facilitate ongoing work on ETF. Another $12,500 will be allocated to support specific ETF projects, pending community review of Jen’s proposals. Link to Details: Loomio proposal Current Status: A wire transfer for $12,500 has been sent to Jen Owen.

SPC Documents

Please visit this page for the latest collection of translated e-NABLE documents.