e‑NABLE’s Strategic Planning Committee (SPC)
The Strategic Planning Committee was formed to provide a venue for the discussion of issues affecting the e‑NABLE community as a whole. The goal of the SPC is to provide guidance, tools, and resources to support the global e‑NABLE volunteer community. The SPC also works to address any road-blocks or challenges that stand in the way of e‑NABLE’s mission of providing free assistive devices to people around the world.
The e‑NABLE community does not currently have any formal governance mechanism. There are no decision-makers. The SPC is intended to provide an informal governance framework, making suggestions to the community rather than imposing strict mandates. To ensure transparency, all SPC meetings are recorded, and these recordings are shared with the e‑NABLE community along with notes from each meeting (see Links to SPC Meeting Recordings and Notes below.
Jeremy Simon, SPC Chair
Jeremy has been a part of e‑NABLE for 4 years and helps to support the enablingthefuture.org website. His company, 3D Universe, is a strong supporter of e‑NABLE and is responsible for developing the e‑NABLE Web Central application. He is a mentor to fellow volunteers as well as classrooms around the world who are interested in participating in the e‑NABLE project.
Jon Schull, Founder e‑NABLE, Re‑NABLE
Jon Schull is the Founder of e‑NABLE. An educator, social and business entrepreneur, inventor, human-computer interaction researcher, and digital community organizer also co-founded the Enable Community Foundation and the pioneering digital rights company SoftLock.com, aka DigitalGoods.com.
Schull is the author of 19 patents, most of them informed by his theoretical work in complex adaptive systems and his Ph.D. in Biological Psychology from University of Pennsylvania. Schull and his collaborators pioneer solutions for “Connected Humanitarians” and their beneficiary-partners around the world.
Maria has been an active e‑NABLE Volunteer and leader since 2014. She created the first “assembly line” model for the e‑NABLE “Hand-a-thon” team building events, brought the e‑NABLE project to scout troops around the world and is the founder of APBLS – Alliance for Project Based Learning Solutions or what we like to call “e‑NABLE Alliance,” a 501c3 non-profit, which focuses on using e‑NABLE in STEM Based service learning projects and creating curriculum for research and testing on e‑NABLE 3D printed devices.
Eric has been an active e‑NABLEr for around 3 years. Over the past three years, he has pivoted his research lab to focus on assisting with the e‑NABLE mission to give the world a helping hand. He has extensively involved a variety of liberal arts students in STEM research projects related to e‑NABLE devices. These projects have ranged from quantifying grip strength of e‑NABLE hands to assessing elementary/middle school student opinions of popular 3D printed hand designs. In addition, he is active in the Google+ e‑NABLE community and has publicized e‑NABLE’s work at a variety of events throughout the Washington DC Metro area.
Dr. Jennifer Mankoff is a Professor in the Allen School of Computer Science and Engineering at the University of Washington. She earned her B.A. at Oberlin College and her Ph.D. in Computer Science at the Georgia Institute of Technology. Her research focuses on increasing the capacity of diverse groups to solve real world problems. Most recently, she has focused on the issue of tools to support fabrication of assistive technologies using methods such as 3D printing. She has been part of the e-NABLE community since 2015 and is working to help support research on device efficacy and design.
Everton is passionate about project management and process design, working as a project manager since 2005. He is using his experience with multidisciplinary teams to lead the e-NABLE Brazil chapter, working on the standardization of chapter processes and the adaptation of the e-NABLE culture to meet the regulatory policies for assistive device manufacturing and distribution in Brazil.
A newcomer to e-NABLE, Bob enjoyed a 40-year career leading global specialty chemical businesses at the most senior levels. During this time, Bob served as president, CEO, group VP and group president of companies and businesses with annual revenues in the $30 million to over $1 billion range.
Bob earned his Bachelor and Masters Degree in Ceramic Engineering in 1972 and 1973 from Georgia Tech and a Masters Degree in Business from Syracuse University in 1977. He holds memberships in the American Ceramic Society, Keramos (Ceramic Engineering Honorary), Sigma Xi (Research Society of North America) and the National Institute of Ceramic Engineers. Additionally, he is a recipient of the Young Ceramic Engineer’s Award of the American Ceramic Society for 1990, and was named a Distinguished Engineering Alumnus of Georgia Tech in 1995. Bob’s interests include church mission work, volunteering at a local historical society and astrophotography. He and his wife have been married for 46 years and have 3 married children and 7 grandchildren.
According to Bob, volunteering with e-NABLE is a great opportunity to meet bright young people, learn new technologies and help people in need.
Jack is the leader and co-founder for the Irish chapter of e-NABLE called ‘Open Creators Limerick’ which is based out of the Limerick Fab Lab workshop. He has a Bachelor in Product Design degree from the University of Limerick where he continues to work as a researcher on the European Union funded research project ‘iBUS’. The overall aim of the EU project is to develop an online platform for custom products and bring manufacturing closer to the end user by utilising the latest technologies including additive manufacturing and product visualisation tools. Jack is contributing to the research and development of the platform while pursuing a research masters based in customisation and 3D printing.
Jack has sought out and developed synergies between the e-NABLE community, his research and the iBUS project to develop a co-design platform prototype for use by e-NABLE volunteers and recipients.
Ed is the Chief Disruptor for Deloitte and has been part of the e-NABLE Community since 2015. The Disruption Team he leads works with new technologies to deliver tangible benefits as quickly as possible to Deloitte’s clients and within the firm itself.The team’s strict mantra is “Fall in Love with the Problem, not the Solution” and e-NABLE really embodies that. Since working with Phoebe, our first recipient, the Disruption team have seen clearly that the problem is not how to create the most functional arm, the problem is to create a functional arm that children actually want to wear. Deloitte are now working with a growing number of children in the UK and abroad and are also excited to be assisting the e-NABLE Community to make an even bigger impact globally.
Links to SPC Meeting Recordings and Notes
Please note: The e-NABLE SPC Meeting Archives have been moved to our new home on Wikifactory.
Governance of the SPC (and how to be a part of it)
- After creating the e‑NABLE G+ community Jon Schull recruited several community leaders who recruited some more as circumstances seemed to warrant. We are eager to be joined by the next generation of e‑NABLE leaders and we’re trying to formulate a lightweight representative democratic process to better realize the emerging vision of e‑NABLE as a “bossless” confederation of Chapters and individuals united by shared values. To participate in this bootstrapping process, please contact Jeremy Simon.
Submit a topic for SPC discussion/consideration
SPC Research effort
e-NABLE Initiatives Approved by Community Voting
e-NABLE is using the Loomio platform for voting on proposed initiatives and projects. For details, please see the instructions here.
Consulting Prosthetics Student Funding ProposalDate Approved: October 27, 2018 Funding Amount: $4,800 USD Description: Chang Liu, current 4th year student (2018-19) of the Prosthetics and Orthotics department, has done a summer internship with e-NABLE, a global community that provides under-resourced users with 3D printed prosthetic arm solutions. Through this internship, it has become clear that the collaborative input of prosthetics students and e-NABLE engineers/designers will lead to better innovation, and the provision of safer and more functional 3D printed prostheses for recipients globally. She has presented on the outcomes of this internship and this funding proposal during the SPC meeting on 12/10/18. Chang would like to seek funding to be employed for 10 hours a week to help extend this collaboration to additional P&O students of Strathclyde. Link to Details: Loomio proposal Current Status: Work is in progress
Funding a SHAP clinical evaluation kit for an e-NABLE clinical study in South Florida (Nicklaus Children’s Hospital, Miami, FL)Date Approved: October 19, 2018 Funding Amount: $2,665 USD Description: Southampton Hand Assessment Procedure kit to provide to Nicklaus Children’s Hospital (Miami, FL), in support of a five (5) year pilot study evaluating the efficacy of 3-D scanning for custom fitting of eNABLE devices and designing novel devices to increase access to 3-D printed orthotic and prosthetic devices to upper limb amputees. Link to Details: Loomio proposal Current Status: Work is in progress
Micro-Grant to fund creation of a simple, low-cost mechanical gripper thumbDate Approved: October 10, 2018 Funding Amount: $500 USD Description: Eric Bubar has applied for a sabbatical to create a microswitch activated gripper thumb. This would be an ultra-low cost, purposely simple design that uses a servo or dc motor to actuate a cable or directly drive the thumb in the gripper thumb prosthetic design of Skip Meetze. The purpose of this micro grant is to provide $500 of funding for equipment costs. Based on early prototypes, this should be sufficient to purchase electronics for 8-10 mechanical gripper thumbs. This funding would be used to purchase the necessary electronics and create kits to provide to partners interested in creating, testing and providing feedback on the design. Additional plastic and other hardware costs to build the hands and any shipping costs would be covered by Eric’s current research lab budget. The requested funding is largely needed to demonstrate that interest in this project from eNABLE as an entity is high. This will strengthen the competitiveness of the sabbatical proposal for the review committee. Link to Details: Loomio proposal Current Status: Work is in progress
Fund Jen Owen’s Work for the Global CommunityDate Approved: September 1, 2018 Funding Amount: $10,000 USD Description: $4000 for 8 months previous work in 2018 at a rate of $500 per month – taken from the funds set aside for Jen Owen and voted on by the community – payable immediately. $500 per month for 5 months from the remaining funding set aside for Jen Owen by previous vote of the community. $500 per month out of the Enable Fund from the community to continue working for them until such a time that Jen is no longer able to or no longer needed once the initial funds set aside for her have run out. Given the wording of the proposal, we are considering this an approval for $10,000 ($4,000 for previous work, $2,500 for 5 months of work already approved by the community, and another 7 months at $500/month). That will take us to September, 2019, at which point a new proposal will be needed. Link to Details: Loomio proposal Current Status: Work is ongoing
New Modular Arm DesignDate Approved: June 1, 2018 Funding Amount: None ($12,500 USD funding will be raised through GoFundMe, with 10% going back to the e-NABLE Fund) Description: Create a design useful in developing countries for amputations below and above elbow. Design a systems approach to upper limb prosthetics, that will better meet the need of arm amputations in the developing word. This will be a modular design that can be manufactured as parts. The final assembly and fitting can be done from a standard set of pre-made parts in a single visit with the recipient. The design will focus on the largest population need, lower arm and mid upper arm recipients. Link to Details: Loomio proposal Current Status: In progress
Ongoing e-NABLE Web Central DevelopmentDate Approved: April 27, 2018 Funding Amount: $10,000 USD Description: The 3D Universe team (Jeremy Simon and Aleks Jones) have been working on the development of e-NABLE Web Central for over a year. A lot of work has been completed, but there are many features that we still hope to deliver. We have always done this development work as volunteers without financial support, and we intend to continue doing so as far as our own contributions are concerned. However, moving forward, we are going to need the help of additional developers, and we are seeking funding assistance to help pay these additional developers for their work. Link to Details: Loomio proposal Current Status: Guillermo (the developer we hired) is doing a great job, and we’re adding lots of new features and functionality. A detailed report of what’s been accomplished with Guillermo’s time will be posted to the Loomio page and the OpenCollective e-NABLE Fund page soon.
E-NABLE Community Printables, Flyer, Event materials packetDate Approved: March 30, 2018 Funding Amount: $4,000 USD (4 Payments of $1000 USD dependent on deliverables) Description: Creation of an e-NABLE Community Printables Packet, Posters, Business Cards and event materials that can be edited by volunteers who may want to replace the English text with text in their own language and add their own e-NABLE Chapter logo and information to it. Link to Details: Loomio proposal Current Status: Work is in progress
Let’s Make a NewsletterDate Approved: December 15, 2017 Funding Amount: $1,500 for one year Description: e-NABLE launched a newsletter this summer, but with no one to lead the project, it has not yet flourished. By Jon Schull’s invitation, Sarah Anne Paynter would like to write a monthly newsletter for e-NABLE. Link to Details: Loomio proposal Current Status: Work is in progress
Using 3D Printed Prosthetic Hands to Improve the Quality of Life of Appalachian ChildrenDate Approved: November 24, 2017 Funding Amount: $1,000 Description: Conduct a study of how e-NABLE devices affect the quality of life of children in the Southern Appalachian region. The study will include standardized pediatric quality of life surveys, as well as Actigraph accelerometry, which will track how much the child is moving the affected limb in space before and after being fitted with the prosthetic. Link to Details: Loomio proposal Current Status: Waiting for an invoice to be generated, after which funding will be issued.
Establish Re-NABLE as custodian for the $50,000 from Google and as executor of the Mini-Grant programDate Approved: November 6, 2017 Funding Amount: $3,500 Description: The Board of Rochester e-NABLE (a NY State non-profit) will become custodian for the $50,000 from Google and act as executor of the e-NABLE Mini-Grant program. Link to Details: Loomio proposal Current Status: Funds have been transferred to Re-NABLE. All future approved funding requests will be facilitated by Re-NABLE.
Allocate funding to support Jen Owen’s work on enablingthefuture.org and other e-NABLE related initiativesDate Approved: September 8, 2017 Funding Amount: $12,500 Description: Based upon community voting, it was decided that $12,500 would be allocated to enablingthefuture.org (Jen Owen) as reward for the past 3 years of work and to facilitate ongoing work on ETF. Another $12,500 will be allocated to support specific ETF projects, pending community review of Jen’s proposals. Link to Details: Loomio proposal Current Status: A wire transfer for $12,500 has been sent to Jen Owen.
Please visit this page for the latest collection of translated e-NABLE documents.
- e‑NABLE Code of Conduct
- Release and Waiver of Liability and Hold Harmless Agreement (for individual volunteers)
- Release and Waiver of Liability and Hold Harmless Agreement (for e‑NABLE Chapters)
- Photo/Video Release Agreement
- e-NABLE Safety Guidelines
- Código de Conduta e-NABLE
- Contrato de Isenção de Responsabilidade, Renúncia a Reivindicações, Assunção de Risco e Dispensa de Indenização (para voluntários individuais)
- Contrato de Isenção de Responsabilidade, Renúncia a Reivindicações, Assunção de Risco e Dispensa de Indenização (para capítulos)
- Formulário de Autorização de Reprodução Vídeo / Fotografia
- Orientações de Segurança
- Code de Conduite e-NABLE
- Directives de Securite e-NABLE
- Décharge de Responsabilité et Convention de Non-Responsabilité (pour les volontaires individuels)
- Décharge de Responsabilité et Convention de Non-Responsabilité (pour les sections)